Well I must admit it has been good living "in the meantime". Life after Chemo/Surgeries/Emergencies has been quite an adjustment for both of as we had spent so much time at the hospital. It almost seems surreal, like we had been in some sort of strange time warp since the date of his diagnosis (February '09)... almost as if time had stood still. Things at home looked as if they had been left exactly as they were, unopened mail, work desk covered with year old documents and seasonal clothes, linens never switched out...like we had to pick up where we left off. Guess that huge mental blank spot could be good old fashioned "denial", which does serve well in traumatic situations. In any case, I do apologize to those of you who have been asking about Christopher's progress and waiting for updates.
I had every intention of keeping the blog up to date with such good new as his trip to Alaska, his getting back in to a normal school routine, his being a part of the Children's Hospital Child Advisory Council and the fact that he had gone through 2 of his follow up protocol testing cancer free! ( Every three months since his treatment finished, Christopher has a full bone scan, an MRI of his right leg and a Chest CT) It is hard to say how many side effects he will have as a result of such heavy chemotherapy. He has experienced some minor ones and possibly even cardiology related complications as well as cognitive issues. I know it was tough for Chris, as crazy as it seems, to go back to "normal" life after such an intense relationship building experience with the Dr'.s, Nurses and other Oncology patients at Wolfsons, but he continues to hang tough and move forward. Enjoy the Pictures and Video!
Much Love and Peace! Patty
This is Christopher bright eyed and bushy tailed (well kind of) on his way to school! He still rides his bike every morning and with the help of a new bike does not even need to Velcro the leg to the pedal anymore! ( :
In June following his chemo protocol Chris and I had the amazing opportunity to take a 7 day Alaska Cruise! Many, Many thanks to Brandi and "Dreams Come True"! Below is on the White Hall Yukon Railway in Skagway and below that is the bi-plane tour of the Misty Fjords in Ketchikan.
In addition to traveling, going to school and playing video games Christopher went out on a limb-literally! :) and took part in a water ski even put on by Adaptive Sports. It was quite the workout but he did great and had a blast! Below is a video of that day at Victory Lake in Jacksonville.
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