Wednesday, November 18, 2009

And on goes Christopher's Wild Ride!...Whew!

The week started out OK, considering the fact that Chris was in the hospital for 4 long days of Chemo. At least it was a "normal" round, just the usual nausea, vomiting and interrupted sleep. The highlight being a surprise visit from Nana and Grandpa Bill! (Above picture)
Christopher was supposed to be in Orlando with them enjoying a week at Wild Kingdom and Disney's many other attractions but his recent set backs prevented this. So instead they came to him, along with two of their friends and it made a big difference in Chris' day. They live in California so unfortunately the visits are few and far between so this meant a lot to both of us...thanks Nana and Grandpa Bill!
We even got the good news that he needed to take a couple weeks off as the last 2 rounds of chemo were a bit much and could be damaging if he went for three in a row. Good news considering he wanted to be home for Thanksgiving so he could spend time with family and also be in good health for his upcoming trip to Fort Walton.
And then the downturn...
Christopher was discharged late Thursday night. Soon after that he began complaining of a constant headache, followed by extreme fatigue and continued nausea. By Sunday night the headaches were unbearable, he could barely stay awake and he had started to throw up blood. The on call Dr. seemed to think, as we both did, that his hemoglobin and maybe even platelets were low so he was scheduled to come in this past Monday for blood work. If only it were that easy. His blood work came back OK though he was given a transfusion just to be safe. When Christopher's blood pressure continued to drop and the pressure in his head building he had to stay for IV antibiotics and fluids. It sporadically helped the pressure but as soon as we got home after 7 hours in the clinic, he spiked a fever and felt very weak again so we ended up at the local Fire Station to try and get the pressure back up. This went on for over 2 days. The Dr.'s suspected he may have "pseudo tumor cerebri" simply meaning there was something causing undue pressure around his brain. He was scheduled for a head CT and a spinal tap to try and relieve the pressure. Thankfully after yet another day of a IV antibiotics, fluids and a head x-ray, a sever infection in the back of his sinus cavity was discovered. This was actually good news. So again pumped with various antibiotics and an exam to make sure the optical nerves were not too inflamed, his Dr. decided to treat that infection, see if he maintains his pressure and the headaches go away and we could avoid the further testing for now. WHEW!
So that was the latest and I will tell you not what we expected with only one round of chemo left!
As usual my "little man" toughed it out and did not once complain, even given the frightening possibilities we were presented with. He is now home, feeling better and back on track for his much anticipated trip to Hurlburt Field, AFB. Thank God! Special thanks to Lt.Col Edward Gedney for making this happen.
To a much quieter next couple weeks!
Happy Thanksgiving to all. I know I have a lot to be grateful for. Patty


This was the sunset over the St. John's River I witnessed as we left the clinic Monday evening. A welcomed sense of peace to a hectic day and days to follow.


2 comments:

  1. Wow,Christopher is amazing and the toughest kid I've ever known. Thank God everything seems to be stable now. Have a wonderful and Happy Thanksgiving!

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  2. got this as a link on my youtube account so more people will see the website and hopefully donate

    Mardie and Tim( i wrote this so it's my account.)

    ReplyDelete